Navigating adolescent CFS

Update on what’s helping. December 26, 2012

Filed under: Uncategorized — parentingcfs @ 4:10 am

Well, here it is post Christmas and I have much to be grateful for. We spent Christmas Day by the river with extended family. My 11 year old boy spent most of his time in and out of a canoe and was as happy as the proverbial pig in mud. No mention of leg pain. Very very tired today but he has missed a bit of sleep these past few days so we’ll see. As I’ve said, dry needling from the osteopath has really helped him, he’s also been taking supplements.

Meanwhile our gorgeous girl came to the river despite the heat and lay on a rug READING A BOOK most of the day!!!

This beautiful day that our kids could enjoy was the biggest gift of all. I gave our girl more frequent midodrine than usual (we are in the process of increasing) and I’m fairly certain this is helping. She is also now had licorice root added to her other herbs and I’m sure this is having an effect too. Also the cranial osteopath we’ve seen has helped her body get a little more back into sync and the targeted clinical pilates has made her stronger. She seems more herself, despite the hot weather. My life seems to be an endless round of cooking nutritiously and making sure everyone has taken their tablets and potions! But I’m so happy to be able to help them and I know this stage will not be forever.

In a few weeks we’ll have to sit down and work out how she is going to approach the new school year. Does she think she can up school attendance from one lesson to two or three a week? Which practitioners does she want to continue to see (as she may prefer to use the energy the appointments take for school or social activities)? Would she prefer to trade me in for another mother? Oops how did that last one slip in?!! Parenting a sick teenage girl has to be one of the most beautiful and most confronting relationships there are! At least i know how she REALLY feels! Or do I??? Biggest gift i ever gave her and myself as we hit the teenage years… I do not need to respond to every comment or angry word..sometimes it is the most powerful message of all… ie let’s move on, neither of us needs to waste any more time on this discussion right now!

So that’s us for now. I feel hopeful again…the sunshine and Christmas cheer helps i’m sure. To all of you out there who are not on one of the top curves of the roller coaster today, my thoughts are with you.


5 Responses to “Update on what’s helping.”

  1. keena Says:

    Glad to hear things are looking up!!! May you continue to have more good days than bad…God Bles!!!!!

  2. Elaine Says:

    I keep reading this, it is so empowering to hear your kids got out and had a lovely day. I feel the same, am devoting my time trying to help – just want to see some improvements

    • parentingcfs Says:

      Thanks for your comment Elaine. It was sooo lovely to have an unexpectedly good Xmas day healthwise. You’ve reminded me that another update is due which I will try to get to shortly. I’m so sorry that you are on the lower rails of the roller coaster at the moment and I sure hope you see some improvement soon. Fixing the gut with supplements is a good thing to focus on I’ve found. However, who am I to say that this isn’t just an unpredictable up rather than a real improvement? Still i shall stick with the former for now! Mother love is a powerful thing..hang in there!

  3. Sue Jackson Says:

    This is all such great news – so glad she is improving. So, the combination of Florinef and midodrine is doing the trick, huh? Wonderful! Did her doctor OK adding licorice root? Just curious because it has the same action as Florinef. Dr. Rowe (the one here) doesn’t like using licorice root just because he says you never know exactly how much of the active ingredient you are getting (vs. Florinef which has a precise dosage), but I tried licorice root for a while (didn’t help me, though).

    Just curious. Anyway, I am so happy for her and for you!!


    Live with CFS

    • parentingcfs Says:

      Doctor doesn’t know about licorice root yet but as she is on a very low dose of Florinef and could be on much more I am sure it is okay.Naturopath was a midwife and is very experienced and knowledgeable so I trust her with this also. Definitely helps our girl. How high a dose did you take Sue, can you remember?

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