Navigating adolescent CFS

Osteopathy October 24, 2012

Filed under: CFS Treatments — parentingcfs @ 10:36 am
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So… today we tried something very interesting. Sacro-cranial massage. This is one way to describe it :

“Cranial osteopaths are trained to feel a very subtle, rhythmical shape change that is present in all body tissues. This is called Involuntary Motion or the Cranial Rhythm.  The movement is of very small amplitude, therefore it takes practitioners with a very finely developed sense of touch to feel it. This rhythm was first described in the early 1900’s by Dr. William G. Sutherland and its existence was confirmed in a series of laboratory tests in the 1960’s and ’70’s.”

Yeah I’m not sure exactly what lab tests are being referred to. In fact this month I am teaching ‘critical analysis’ and my students would tear apart the vagueness of that test reference. At least, I hope they would, otherwise they haven’t been listening. Anyway I digress!

The visit came about as a result of listening to a friend’s stories about how this particular osteopath had helped her children.(Thanks again M!)  In particular, that when her 12 year old was particularly low last winter he ASKED to visit this osteopath! Hey, I’m always up for a personal recommendation when my kid is so sick. (Actually I pretty much only go by personal recommendations as the expertise of the practitioner is as important as the practice itself when dealing with an illness this complex) And, besides, it’s an outing! It took me a while to get our girl to agree to try yet one more thing but try she did – on the understanding that she would do it once to humour me and that would be it. Bless her she didn’t even complain on the way there, even though she was clearly exhausted from a long visit by friends yesterday.

The osteopath explained the practice as best she could and then our girl took her shoes off and hopped up on the massage table. Within minutes her body looked more relaxed than I had seen it since she became ill. She didn’t fall asleep but others do.

Afterwards, when she had agreed to another appointment(!), I asked her if she felt anything. Only when the osteopath touched her head apparently and then it was very gentle.

The osteopath said the best way to describe what she felt when treating my daughter was that her nervous system was functioning in separate parts, at different speeds, instead of in rhythm as it should be. Also that her body feels all out of balance from continual growth spurts (she is now 174cms by the way).

All very very interesting. Apparently some things should change after this first treatment but it usually takes 3 appointments for things to really start to shift.

There is no way my daughter would have agreed to go back again if she had been lying there bored with nothing going on for 30 minutes. She sure did look relaxed.

I’m hopeful and will keep you in the loop. Slowly slowly we are assembling a wonderful group of practitioners to give our girl the best possible chance of getting well sooner rather than later. Yay.

Have you had any experience with cranial osteopathy?


2 Responses to “Osteopathy”

  1. Sue Jackson Says:

    Very interesting, Annie. I took Craig to an osteopath many years ago – on Dr. Rowe’s advice!! At the time, Craig hadn’t started Florinef yet and his main symptoms were pain – back pain, chest pain, headaches (very different from Jamie and I), and Dr. Rowe said this Dr. had helped many of his pediatric patients.

    It was all a little too new-agey for Craig! lol He was only about 7 or 8 at the time. They had low lighting, new age music playing, etc. We went a few times, but he really didn’t like it and it was about a 45-min drive from here, so we didn’t continue. Shortly afterward, Craig started Florinef and all his pain disappeared so we never considered it again.

    Also, my best friend from high school is a physiatrist (pain specialist dr) and she has been learning these techniques. She swears by it – says it often helps patients for whom nothing else seems to work. In fact, she’s just written a new book about mind-body-spirit sort of stuff that mentions osteopathy.

    So, I hope it helps H!


    Live with CFS

  2. Marita Says:

    That is fascinating. I hope it continues to help.

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