Navigating adolescent CFS

Happiness March 21, 2012

Filed under: CFS Treatments — parentingcfs @ 3:06 pm

This morning I woke our girl up at 7:15 as requested, then crawled back into bed while she got up to have first shower.

A moment later she appeared in our room and said, ‘I just wanted to say that you have no idea how happy I am after having such a s$#%t year, last year.’ ( Yes, she is practically a teenager and we have been a little lax about the swearing aspect…)

Such is the joy of a child who can participate in just the ordinary things of life after having experienced what it’s like not to be able to.

Hearing her say this, and knowing it was how she really felt, meant more to me than winning a million dollars.

I hope your day is enriched by happiness.


ANS – Autonomic Nervous System March 6, 2012

Filed under: CFS Symptoms,CFS Treatments — parentingcfs @ 8:19 pm
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Now that our girl is having less trouble with symptoms caused by Orthostatic Intolerance (woohoo still on cloud nine over this one!) I’m starting to think about what else I can do to make her more comfortable and help her heal. As I’ve written before I try to make sure she gets the right food (sometimes just ANY food) and doesn’t do too much. At the moment I’m concerned she is overtaxing her brain keeping up with the maths homework load she has but she has a 4 day weekend starting in 2 days so aiming for her to have a restful time then and hoping that will be enough.

Tonight Research 1st published a great article by  Alan Pocinki, MD, FACP from George Washington University Hospital. You can read it here. He includes some enlightening individual charts that highlight the problems individuals with CFS have as result of the dysfunction of their ANS. A very interesting read that clearly sets out some of the main issues our girl’s body is struggling with. It has given me some food for thought about what else I can seek out to help her.

Anyhow, I just wanted to let you know about it! Hope the sun is shining where you are. : )