Okay let me get one thing straight before I write this. I HATE that my girl is so ill. I wish I could take the sickness for her. I would chop off my right arm – I paused to think about this phrase and I really would! – if it would cure her. But it won’t. So instead I take it one day at a time and look on the bright side where I can because that is the best thing to do.
So I hope you’ll understand where I’m coming from with this post….
The upside to my gorgeous 12 year old having Chronic Fatigue Syndrome:
1) I get to spend lots of time with her.
2) I get to hug her more than if she was well.
3) She still likes me most of the time despite what her hormones are telling her.
4) I’m not worried that she’s out ‘experimenting’ with anything – except whether she can last another 30 minutes at school. (Hopefully she wouldn’t be doing this just yet anyway but let’s face it I know exactly where she is every minute of the day and most often that’s with me! And that’s unlikely to change anytime soon. But if it does that would be wonderful.)
5) I get to watch crap television (and some not so crap) that is occasionally fun and I know lots about the Kardashians…surely that’s a life skill?!
6) I never have to be on a crowded peak hour train at the end of the day just wishing I was at home..because I already am!
7) I never have to iron work clothes.
8 ) I’m learning to live in the now because it’s impossible to know what each day holds – well I guess it is for anybody but I’m only really learning that now.
9) I’ve learnt how to set up and maintain a blog and I get to write.
10) I’ve met a whole lot of lovely people in the blogosphere and become friends with two other wonderful mothers (of kids with CFS) from school whom I barely knew before.
None of this comes even close to making up for what my girl goes through.
However, it’s been a bit of a bleak week here while she missed out on Year 6 camp so I’ve got to hang on to the positives as hard as I can right now.
Any upsides for you? It’s okay to say, don’t you think? Because we all know it’s not an either or. It’s about being grateful for what we have.