Last month the biennial IACFS/ME conference was held in Ottawa. It’s actually nail biting stuff for us waiting to hear what is tabled as it seems we are at a pivotal stage of research into this mysterious illness and , of course, we are so personally invested and holding our breath constantly (okay not literally but you know what I mean!) in the hope of hearing of new, life changing developments.
I’m not going to go into detail. A full summary provided by the great people at Research 1st can be found here.
Suffice to say there is still no definite evidence as to causes or successful treatments. However there was some news on time frame. One of our Melbourne specialists Dr Katherine Rowe presented and spoke about her latest research into adolescents. As Dr Charles Lapp summarises on the Research 1st website – ‘Bottom line: within 5 years 60% reported recovery and at 12 years 88% reported recovery, although one-third were consciously monitoring their activity. More than 95% were working or studying part or full time. What helped them most to recover were symptom management, continuing social contact, physical activity, and engagement in education (the best predictor of outcome). Massage and diet advice was helpful, but restrictive diets and supplements were not.’
It’s been really difficult to find studies of outcomes for adolescents. As I’ve mentioned previously there was a general feeling that adolescents had a greater chance of recovery than adults but the only actual data available stated that only somewhere around 30% recovered. (Sorry I’ve tried to find that source and post again but I’m running out of time to get this post done before other mother stuff takes over. Anyhow let’s choose to ignore that more negative source now that Dr Rowe’s slightly more cheerful study is published!)
So we will focus hard on being one of the 60% that recovers within 5 years. How will we do this? By NOT focusing hard on achieving anything except happiness. Which we’ll achieve by not doing anything hard. Oh it’s all so confusing! But you get the idea I hope!
Okay, off to think about ‘nutritious but delicious’ dinners. Again. Yee haa!