End of the first week back at school and I’m wondering if we might have found a baseline, ie; a level of activity that our girl can sustain without wiping herself out.
Monday and Tuesday she went to school from 9 to 11am, no school Wednesday, then 2 until 3:30pm Thursday and Friday.
The different times at the end of the week have come about because the Year 6s have been working on a special group project but, coincidentally, it seems to be potentially a good routine for our girl. This is because at the end of the week she spends 30 minutes less at school each day and doesn’t have to try to rush in the mornings.
I’m particularly happy to see her not crashing as Wednesday didn’t turn out to be very restful due to lovely and very welcome visitors and an appointment.
Also…wait for it……our girl had a piano lesson! You may remember me mentioning last term that she wondered if she might be able to start piano again. From 8 to 11 years old she had weekly piano lessons, then at the beginning of the year she wanted to try violin. Whilst she loved violin too, she has found holding the instrument too tiring and stopped lessons reluctantly back in May. She hopes that piano will be more manageable. As I wrote about last week we are on the lookout for more ‘green’ activities and she has played the piano for around 10 minutes each day since the lesson with evident enjoyment! She played for around 10 minutes in the lesson too and said she really started to vague out at the end but thoroughly enjoyed herself. We are keeping it as low key as possible by not doing regular lessons. Her wonderful teacher contacts us if she’s had a cancellation and if our girl feels up to it we go. Pretty perfect huh? I can’t tell you how wonderful it is to hear her at the piano again.
We have steered away from any formalised exercise program..at least temporarily..while we work out the school baseline. It just gets so complicated trying to work out what’s causing the crashes otherwise. She has been on the Wii fit for a few minutes and done incidental walking but that’s about it.
Of course, she still feels unwell – fatigued, nauseous, etc but this week’s shorter, planned school attendances have given her some feeling of control and , of course, the essential socialisation. We have cut out recess or lunch presence because she was finding it too much. If she still feels well with the current schedule in a couple of weeks we will add in a recess or two. Or not. Who knows!
We also had our first visit this week from a ‘Visiting Teacher’, funded by the Department of Education and Training. She can come weekly to see our girl for up to an hour. If our girl doesn’t feel up to working on anything she just needs to tell the teacher when she arrives and she goes away! No pressure but some more support. Good stuff. Also this teacher can follow our girl though the system as long as she needs her and advocate for her at school. Next year she will run an information session with all the Grade 7 teachers. (Though we still suspect our girl will only be doing one or two subjects at this stage…)
So. all up, a positive week.
Hope life is good with you. : )