Oh I love love love school holidays!
On school holidays our girl doesn’t feel she’s missing out on things her friends are doing (school!) or somehow letting the side down by not doing what every other 12 year old is doing (school!).
Right now I can see her through the kitchen window working with a friend on an experiment involving turning a glass full of water and covered with a piece of cardboard upside down. Her younger brother is filming them. Ooops, didn’t work that time and water everywhere! Much chuckling.
I haven’t seen her this sparkly for over a week so it feels great. Her friend is here for a scheduled 2 hour visit to make up for our girl not getting to her party last weekend. Birthday parties are pretty difficult as so much energy everywhere = exhaustion. We’ve worked out a tactic whereby I take her for the last 45 minutes so she can give a present and sing happy birthday. Works well mostly but just didn’t get to this last one.
This last crash seems to have gone almost as long as the post 7km walk at Uluru back in August. Today our girl got back on the exercise bike for the first time since last Wednesday and did 10 minutes. (Back down from the 15 that may have caused the crash) Her heart rate shot up to 130 at one point but only very briefly, the rest of the time it hovered between 100 and 112…..weird huh?!
I have yet to check out the monitor for myself..which I will do tonight…to rule out that it’s the monitor not working properly rather than her heart! I suspect all my experienced CFS bloggers out there are thinking ‘no that’s a perfectly normal OI result’! At least we appear to have found a heart rate monitor that fits! Thanks everyone for your suggestions. In the end I just fiddled around with one of the ones we had. Provided it works on the control group (me!) tonight we’re set.
Same as previously she also records a 110+ heart rate after a shower. I did that one manually hence the approximation. It’s weird feeling her little pulse beating so desperately after such a minor activity.
Aaah water glass upside down experiment has worked and been recorded for posterity. Learnings? If friend gets thirsty and drinks the water the experiment doesn’t work! Hehe!
Hope you’re having a good day too!