As you may remember, right from the beginning, nausea has been a major symptom for our girl.
This illness has such an impact on almost every system in the body and the digestive system is no exception.
This latest big crash, after our Uluru trip, has seen the nausea return with a vengeance and start interfering with our girl’s sleep (delays her getting to sleep) and food habits again. So I thought I’d share some of the the things that work for us.
My gorgeous naturopath friend, Caitlin, alerted us early on to many of the nutritional issues we would need to address to help our girl be as well as possible. The one we’ve been able to implement most easily is porridge oats with LSA for breakfast. Our girl can stomach that most of the time and it truly seems to give her boost. Most of the other points Caitlin mentioned are also discussed in this post.
Recently, a friend from school sent me through some notes put together by Melanie Reid, a South Australian dietician who has kindly let me link them to the blog. You can download the powerpoint here. http://sacfs.asn.au/download/CFSpowerpoint.ppt
In summary, Melanie covers the main issues I’ve become aware of, including the ones I’m particularly interested in; glucose levels, food sensitivities and supplements. I’ve previously read that many CFIDS sufferers become intolerant of various foods because of the impact of the illness on digestion. With our girl I’m particularly aware, sadly, of fructose intolerance (apples, pears, onions, leeks, honey, mangoes amongst others) and wheat related issues.
Our girl is 167cms and only 44 kilos, a lovely giraffe like her dad, and I have been finding it really hard to limit her food choices as I’m just so glad when she finds something she feels like. Luckily her body seems to be sending her very clear messages..and she listens to them mostly… although a few sugary products still creep in here and there! Again – there has to be some treats so long as she thinks it’s worth the impact on her symptoms.
Early on she discovered eating straight eggs makes her feel iller afterwards and after a period of craving them and mourning their loss, they have just been dropped completely – although still tolerated in baking etc. She used to love apples but obviously the fructose is a problem as those have been dropped now too. I noticed after we had wheat pasta for the first time in a while the other night she had a major stomach ache. So we go gently on, adapting where it seems to work. And trying not to run out of food types to eat!
As far as supplementing goes there seems to be a consensus that magnesium and omega 3(fish)oils are helpful. Melanie mentions this as well. Our girl used to have no problem taking tablets but the multivitamin supplements are beyond her these days. At the moment the only thing she can manage is the fish oil and I’m just grateful she can manage that. I haven’t given up the quest for a more manageable multivitamin tablet but tracking one down is still one of the many things on my list of ‘things that might help and should be tried!’
Finally, an interesting note is that for the last few weeks our girl has been finding raw green capsicum helpful before bed to deal with the nausea! Not sure what that’s about but my dear naturopath friend Caitlin, tells me it’s to do with the enzymes helping her digestion (Did I get that right Caitlin?!)Last night she self -medicated with 3 raw mushrooms, some capsicum and 6 cherry tomatoes and had no nausea at all! Fascinating. We shall see how tonight goes. Hopefully she’ll be pulling out of the post Uluru crash soon and the nausea will abate a bit anyway…..
This is a massive topic and I will revisit it in posts to come. In the meantime I’d love to hear your thoughts.