Well, for those of you who clicked through yesterday you would have noticed a title with no post here. Wish I could tell you what happened but I can’t as I don’t know. Will attribute it to the new mysteries of blogging and continue!
A quick summary of what I wrote about yesterday:
1) Our girl is having a good week. Half days Monday, Wednesday and probably today. Full day Tuesday. Full days are witnessed by me with mixed feelings as they can cause her to crash and not make school for the rest of the week which is what happened last week.
2) I’ve given her total say in how much school she does. Tuesday I went at lunch as instructed by her and she said she wanted to try to stay for the afternoon provided she could call me if she wanted. I said yes and skipped gaily off to have a life…ooops did I say that? If the last weeks are anything to go by giving her control helps her immensely. I suppose I would have been starting to learn this lesson around now anyway, as she gets older, but really it’s a completely different ballgame to having a well kid.
3) The reality is that when even the experts can’t agree on the best treatment for CFIDS – except maybe the importance of sunshine and keeping up socially – how on earth can I insist on her doing anything? I thought I had already got to this place but then there was that morning early last week when I really encouraged her to go… I don’t think I would do that anymore. Of course I can’t ignore that how I was feeling that morning probably influenced my decision. I think I’ve accepted better now the temporary hiatus to having any kind of plans for myself that can’t be changed at the last minute. Quick cuppas at the local cafes with friends and family are a lifeline right now. Really grateful for everyone’s support.
How’s your week going?