parentingcfs

Navigating adolescent CFS

What’s in a Name? CFS/CFIDS/ME? July 20, 2011

Filed under: CFS Diagnosis,CFS Symptoms — parentingcfs @ 10:47 am
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Just wanted to share something that has occurred to me about the labelling of CFS – or as I now prefer to call it online – Chronic Fatigue Immune Dysfunction Syndrome (CFIDS).

Myalgic Encephalomyelitis (same illness but the name originated in UK while CFS is from the US as I understand it) is just too much for everyone to remember.

CFIDS is too much of a mouthful as it is, which is why I rather suspect we are still stuck with CFS or, even worse, ‘chronic fatigue’ when we talk about it.

These latter are a problem because it continues the misunderstanding that this illness is just about fatigue when it so clearly isn’t. (I have found another good source that explains CFIDS http://mcwpa.org/what-is-mecfs/ and the issues surrounding it really well – scroll down on the right to see a list with information pertaining to adolescents also).

However I am guilty of using the shorter versions myself when talking about it…just because it’s quicker! And so even I perpetuate the myth somewhat. Ho hum.

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