Navigating adolescent CFS

What’s in a Name? CFS/CFIDS/ME? July 20, 2011

Filed under: CFS Diagnosis,CFS Symptoms — parentingcfs @ 10:47 am

Just wanted to share something that has occurred to me about the labelling of CFS – or as I now prefer to call it online – Chronic Fatigue Immune Dysfunction Syndrome (CFIDS).

Myalgic Encephalomyelitis (same illness but the name originated in UK while CFS is from the US as I understand it) is just too much for everyone to remember.

CFIDS is too much of a mouthful as it is, which is why I rather suspect we are still stuck with CFS or, even worse, ‘chronic fatigue’ when we talk about it.

These latter are a problem because it continues the misunderstanding that this illness is just about fatigue when it so clearly isn’t. (I have found another good source that explains CFIDS and the issues surrounding it really well – scroll down on the right to see a list with information pertaining to adolescents also).

However I am guilty of using the shorter versions myself when talking about it…just because it’s quicker! And so even I perpetuate the myth somewhat. Ho hum.


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